Beyond The Tube: Real Stories, Real Support

Ep2: “It Just Broke My Heart” – Eliana's Story of Strength and Survival

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Episode notes

What happens when your baby’s first breath is followed by a rush to ICU—and a journey no parent saw coming?

In this episode, I’m joined by Eliana, a remarkable mum whose little boy Luke was born with a rare and complex condition that baffled doctors from day one. From navigating life in the NICU to becoming a pro at tube feeding, Eliana takes us through the emotional highs and heartbreaking lows of raising a child with medical needs—without a clear diagnosis for the first 16 months.

We chat about the early trauma of separation, those early days of uncertainty, and how Luke’s feeding tube—once a daunting unknown—has now become part of who he is.

Her story is raw, real and powerful—and I can’t wait for you to hear it.

🎧 Follow Eliana on Instagram: @thetubiemum

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Instagram: @beyond.the.tube.podcast

🎙️ This is a Podvan Media production.

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