The Story

My daughter died of ME. I had to fight the NHS for answers

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Episode notes

  • When Sean O’Neill’s daughter Maeve died aged 27 from malnutrition caused by severe ME - myalgic encephalomyelitis - he faced years of waiting for an inquest to find out why the system failed her. That inquest has just ended, but will its ground-breaking conclusion change things for the hundreds of thousands of ME sufferers in the UK?

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Information and helpline services for ME are available at Action for ME and The ME Association.

Further reading:


Guest: Sean O’Neill, Maeve Boothby O’Neill’s father and Senior Writer, The Times.

Host: Manveen Rana.


Get in touch: [email protected] 

Image credit: O'Neill family.



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